{"id":5335,"date":"2021-11-23T08:30:36","date_gmt":"2021-11-23T08:30:36","guid":{"rendered":"https:\/\/www.dgen.net\/0\/?p=5335"},"modified":"2024-01-19T12:17:37","modified_gmt":"2024-01-19T12:17:37","slug":"open-life-data-framework","status":"publish","type":"post","link":"https:\/\/dgen.net\/0\/2021\/11\/23\/open-life-data-framework\/","title":{"rendered":"Open Life Data Framework"},"content":{"rendered":"

Report: https:\/\/dgen.net\/1\/OpenLifeDataFramework-2021-11-18.pdf<\/a><\/p>\n

Official site: https:\/\/appg-longevity.org\/open-life-data-framework<\/a><\/p>\n

\n
\n
\n

Vision: To enable consent-based, trust-enhancing and secure sharing of personal \u2018health-relevant data<\/a>\u2019 from the private sector to improve and level up health and wellbeing.<\/p>\n

Mission: To create the enabling conditions for public and private sector actors to design and implement a framework that facilitates trustworthy data sharing for public benefit while unlocking innovation to increase healthy life expectancy by 5 years while minimising health inequalities.<\/p>\n

Throughout, there is an emphasis on the need for innovation, continuous development and learning balanced with the need to address long-term stability. That focus must be placed to prioritise the delivery of measurable outcomes and to communicate clearly along the journey.<\/p>\n

The scope of this work includes data that is generated by the private sector (both commercial and non-profit actors), such as that from apps and digital services.<\/p>\n

It does not aim to address public sector data, for example, in electronic health records. To illustrate, we build on classifications in the paper<\/a> \u201cPrivacy protections to encourage the use of health-relevant digital data in a learning health system\u201d and illustrate below.<\/p>\n

\"\"<\/p>\n<\/div>\n<\/div>\n<\/div>\n

The Open Life Data Framework was a recommendation in The Health of the Nation<\/em>. Its rationale was published in the Lancet, Open Life Data to Support Healthy Longevity for All<\/em><\/a>, <\/em>on the same day the APPG published Levelling Up Health<\/em> on 9 April 2021.<\/p>\n

The specific goals are to:<\/p>\n